International Ataxia Awareness Day
Every year on September 25th, International Ataxia Awareness Day sheds light on this rare disease. The day also encourages Ataxia companies and individuals around the world to advocate for a cure.
Ataxia is defined as the loss of complete control of bodily movements.. Ataxia is a degenerative disease of the nervous system in the medical world.. Poor coordination, a tendency to stumble, difficulties with fine motor tasks, and language changes are all typical signs. The condition is caused by damage to the cerebellum.. The cerebellum, a fist-sized portion of the brain stem, controls muscle coordination.
The cerebellum is damaged by various conditions: Various conditions can cause damage to it.
- Stroke
- Tumor
- Cerebral Palsy
- Brain degeneration
- Multiple sclerosis
- Infections
- Vitamin deficiencies
In some cases, overuse of alcohol or certain medications damages the cerebellum. Ataxia can be present in a variety of ways. Hereditary is one of several such disorders, called spinocerebellar ataxia (SCA). There is no known reason for ataxia for those with ataxia. It is called idiopathic ataxia when a doctor is unable to determine the cause of the illness.
In the United States, 150,000 people are affected by this rare disease. Ataxia affects 26 out of every 100,000 children worldwide, and there is no cure for ataxia.. However, signs can be controlled. Symptom management can often involve medications, physical therapy, and occupational therapy. Many who lose mobility as a result of ataxia may need a mobility device, such as a walker or wheelchair.
Patients of Ataxia have a shorter life expectantly. Many people who had ataxia as a child or young adult have ataxia. However, some people with ataxia have lived into their 60s and beyond.
How to celebrate #ataxiaawarenessday on a daily basis, according to a tweetaawarenessday
This day, the National Ataxia Association hosts a variety of activities. Presentations and informational seminars are among the activities that have been held to inform others about ataxia. People affected by ataxia are encouraged to share their personal experiences with others. This is also a day to start preparing for the Walk N' Roll to Cure Ataxia fundraiser, which takes place each fall..
On social media, you can participate in #AtaxiaAwarenessDay.
The international ataxia awareness day is the first in history to recognize the day.
The National Institutes of Health (NIH) cosponsored the International Friedreich's Ataxia Conference in 1999. Other conference participants included the Office of Rare Diseases and the Ataxia Research Alliance of Friedreich (FARA). The Office of Rare Diseases and the Ataxia Research Alliance (FARA) were among the other conference participants. On September 25, 2000, the conference served as the springboard for the first International Ataxia Awareness Day. Each year, the National Ataxia Foundation (NAF) organizes and promotes the event. The National Association of Black Engineers was established in 1957 and is headquartered in Minneapolis, MN.
