International Thalassaemia Day
Every year on May 8th, International Thalassaemia Day honors thalassaemia patients who are no longer with us. It's also a day to honor the patients who are alive and striving for a higher quality of life.
Thalassaemia is a genetic hemoglobin disorder.. Hemoglobin is the iron-rich protein present in red blood cells. Hemoglobin's job is to circulate oxygen to the blood. The hemoglobin in a person with thalassaemia is lower than average. Multiple blood transfusions are usually required, making life extremely difficult. Every two weeks, some people with the disease require a blood transfusion.
According to the most recent estimates, around 280 million people around the world have thalassaemia.. About 439,000 people have a severe case of the disease. Thalassemia is most common in the following ethnic groups: Thalassaemia is most common in the following ethnic groups:
- Italian
- Greek
- Middle Eastern
- South Asian
- African
Thalassaemia is a common disease that causes a variety of health signs. Anemia, exhaustion, dizziness, shortness of breath, elevated risk of infections, and abdominal swelling are all typical signs of anemia, exhaustion, anemia, dizziness, shortness of breath, and abdominal swelling are among the signs. Some people with thalassaemia also have too much iron in their body. When the body has too much iron, it can damage the heart and liver..
Children with this illness are often left homeless, and children with this condition are less able to thrive. They are slowing growing. Skull bones that are not shaped properly may also be present in children with thalassaemia. These signs appear within the first two years of life for the majority of children.
How to celebrate #internationalthalassaemiaday.
Every year the Thalassaemia International Federation (TIF) organizes various activities to raise money for thalassaemia. The year's theme is to fuel discussions centering around the year's theme. Find out how you can help support the TIF's work if you want to participate. Don't forget to learn more about thalassaemia and other hemoglobin disorders, as well as donate blood. With #InternationalThalassaemiaDay, you can raise funds for this day.
The international thalassaemia day's history is one of the oldest thalassaemia day in the United States
International Thalassaemia Day was established in 1994 by Panos Englezos, the president and founder of TIF, Panos Englezos. He established the day in honor of his son, George, who died of thalassaemia in his son. Each year, the TIF develops a special theme for the day. The following are the most recent themes that have been included:
Patients are able and inexpensive to novel therapies in 2020, the dawning of a new era for thalassaemia: it's time for a global effort to make novel therapies available and affordable to patients
Universal access to high-quality thalassaemia healthcare services in 2019: Building bridges for patients and patients. Thalassaemia past, present, and future: Documenting progress and patients' needs around the world. Get connected: Get connected: Share knowledge and experience for a better tomorrow in thalassaemia. In thalassaemia, there are safe and effective drugs available. 2016: Access to safe and effective drugs.
