World Duchenne Awareness Day - September 7
Thu Sep 7th

World Duchenne Awareness Day

Every year on September 7th, World Duchenne Awareness Day honors infant boys who live with Duchenne Muscular Dystrophy (DMD). (DMD) is a registered disability in the United States. It's also a day to raise concerns of this genetic disorder..

1 in every one of 5,000 boys is born with Duchenne Muscular Dystrophy (DMD). Progressive muscle degeneration and weakness are typical of this genetic disorder. uscle degeneration is triggered by a protein called dystrophin. Dystrophin is the protein that maintains muscle cells intact. This protein is also lacking in the brain for those with DMD. Children with DMD often have learning difficulties and behavioral problems as a result of their autism..

Girls can also be carriers of this disease, but only moderately affected. Boys are more likely to be affected by the disease. Boys are also affected by DMD, which also affects boys more severely.

DMD has several common signs such as::

  • Frequent falls
  • Trouble getting up
  • Walking and running are both difficult and running
  • Abnormal gait
  • Large calf muscles
  • re learning disabilities are learning disabilities
  • Heart problems

There is no such thing as a cure for DMD. Corticosteroid therapy is the only safe treatment for DMD. Prednisone daily treatments help muscle endurance and function.. The development of muscle weakness also slows as a result of Prednisone..

Certain types of medications can also help with symptoms. These therapies include range-of-motion exercises, braces to keep muscles tight and flexible, and the use of mobility aids, such as wheelchairs and walkers.. Oxygen therapy may be needed as the disease begins to weaken the respiratory muscles.

The life expectancy of those born with DMD has increased over the years thanks to these types of medications and therapies. Boys with DMD will not be expected to see their teenage years for the first time at one time. However, those with DMD will most likely reach their 30s, 40s, and 50s, as well as their 40s and 50s.

How to celebrate #worldduchenneawarenessday.day

Learn as much as you can about DMD in order to participate in this day. If you know someone with DMD, please encourage them to share their tale. orld Duchenne Organisation by donating to the World Duchenne Organization.. You can also advocate for those with DMD and help raise concerns of the condition. #WorldDuchenneAwarenessDay is a hashtag that should be shared on social media. Be sure to post this day on social media with #WorldDuchenneAwarenessDay.

The world duchenne awareness day is the first in history.

DMD's first diagnosis was made over 150 years ago. dr. However, it has taken many years to understand the effects of this disease on the individual with DMD, as well as their families. In 2014, Elizabeth Vroom and Nicoletta Madia founded the first World Duchenne Awareness Day to raise money, raising hopes. Both of them are active members of the World Duchenne Organization. Since then, the day has remained a worldwide phenomenon, with participants from around the world.